HIE is a description, not a definition.

Noah has HIE.

Noah has cerebral palsy.

These terms aren’t used in a derogatory way or to limit him.

They are used in the same way that I would use the following:

Noah has brown hair.

Noah has hazel/brown eyes.

Noah is 23 months old.

Noah is my son.

None of those DEFINE who Noah is.

Noah is a very sweet, sensitive little boy.

His father is his best friend.

There’s a spark behind those beautiful eyes of his that reveal wisdom beyond his years.

He’s been through hell and back.

I may refer to him as having HIE, but that doesn’t mean that he isn’t so much more than that.

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